A new study at the University of Minnesota found that cancer rates in children are increasing all over the world. The study, led by Jenny Poynter, PhD, was funded in part by Children’s Cancer Research Fund. It found that incidences of leukemia, certain brain tumors, neuroblastoma and hepatoblastoma have all increased in children under the age of 5. The study specifically focused on the rising …
Looking for the Finish Line
This piece was originally posted by Kristy Westrom on the CaringBridge page for her son, Liam, who was diagnosed with T-cell acute lymphoblastic leukemia in May 2018. You know that feeling when you’re so exhausted that you just don’t know if you have it in you to keep going… but you do it anyway? There are a few times that I have truly felt like …
Advocating for Your Child During Cancer Treatment
Occasionally, parents of children with cancer experience surprising and tense situations with clinical care teams. For Nicole, mother of acute myeloid leukemia survivor Jacob, this meant having honest conversations with Jacob’s doctors and nurses, or pushing back and diligently asking questions to effectively make decisions for his overall health. When Jacob was going through the thick of chemotherapy and a bone marrow transplant and not feeling …
Cancer Survival and Socioeconomic Status
Racial and ethnic disparities have long plagued health care, but according to Children’s Cancer Research Fund Chief Medical Advisor Logan Spector, PhD, no one knew quite how much or how exactly these disparities affected African-American and Hispanic children with cancer. So Dr. Spector’s team delved into this question: Why do African-American and Hispanic children die of cancer more often? Is the disparity caused by socioeconomic …
Just A Checkup
There are moments, once you have been through what we have, that make you recognize another cancer parent. You may feel gravitation towards a complete stranger – something draws you to them without a logical explanation. Maybe it’s a look in their eyes that you recognize. The mom standing in the elevator just emits this painful feeling that I’ve felt before. She tells me she …
There’s Always Hope – Catherine’s Story
In 1998, Cheryl brought her daughter, Catherine, in to the doctor’s office for what felt like the hundredth time. A little over a year earlier, Catherine was diagnosed with acute lymphoblastic leukemia. At just age 3, she had already been through numerous appointments and procedures to try to fight the disease. This time, though, the cancer was back, now attacking her optic nerve and making …
Meet Saiya – Honoring A Cousin’s Memory
Saiya, now 11 years old, has just a few memories of her older cousin, Siona. She remembers being 3 and seeing the tubes and patches taped to her 6-year-old cousin’s chest, and playing with each other in Siona’s hospital room. She remembers asking her mom why Siona didn’t have any hair, and her mom explaining that the medicine to treat her leukemia made her hair …
Please, Don’t Stay Little
This piece was originally posted by Kristy Westrom on the CaringBridge page for her son, Liam, who was diagnosed with T-cell acute lymphoblastic leukemia in May 2018. Please, don’t stay little. Please, grow into an amazing young man who is intelligent, caring, and happy. Please, try all the things and make lots of mistakes. Please, continue to grow physically, emotionally and mentally. Please, grow taller …
Against All Odds
Tracy’s brother once said about her, “Don’t ever tell my sister she can’t do something, because she will always prove you wrong.” Proving people wrong has been the unifying thread of Tracy’s life, ever since she was diagnosed with leukemia nearly 25 years ago. When Tracy was just 15, her energy was extremely low. When her doctor checked her iron levels, he decided to also …
Holes – A Survivor’s College Essay
One year ago, Matthew Buff, a leukemia survivor, was fine-tuning his college applications. Today, he is a busy freshman at Emory University majoring in biology on a pre-med track. Matthew’s personal goal is to become a pediatric oncologist focused on genetic research. The following is his college admissions essay. A round piece of silicone wrapped in a metal ring about the size of a quarter. …
Making the Bed
This piece was originally posted by Kristy Westrom on the CaringBridge page for her son, Liam, who was diagnosed with T-cell acute lymphoblastic leukemia in May 2018. I made the bed today. Not just straightening the duvet and throwing the pillows on the bed, but fully and purposefully placing the decorative pillows and throw on the bed. I haven’t fully made the bed since before …
The Beginning – Liam’s Diagnosis Day
This piece was originally posted by Kristy Westrom on the CaringBridge page for her son, Liam, who was diagnosed with T-cell acute lymphoblastic leukemia in May 2018. It was a Thursday morning. We had a busy day planned with a doctor’s appointment, going to the gym, meeting friends for lunch, a play date and swimming lessons. It was a regular well-check appointment. I assured Liam …
The Finish Line
Michelle Vaith originally gave this speech at CCRF’s Thanks to You event in September 2018. After 859 scary, grueling and extremely stressful days of cancer treatment, our daughter Brooklyn made it to the finish line. Brooklyn was diagnosed with blood cancer at just 2 years old and finished treatment for high-risk acute lymphoblastic leukemia (ALL) just in time for her fifth birthday. After living through …
CCRF Supports 4 New Emerging Scientists
Young scientists who want to dedicate their careers to finding better treatments for children with cancer face a tough road. Young researchers, who may not have as much of their own published research to make them stand out, rarely receive funding early in their careers. This means great ideas can go unexplored for years until the researcher has published enough of their own work to …
Less Toxic Treatments for Children with AML
Every so often, as Dr. Cara Rabik is in her lab studying better treatments for acute myeloid leukemia (AML), she thinks of a patient she had when she was a resident years ago – the person who is the reason she’s studying this disease today. This patient was fighting AML, a type of leukemia that is less common in children than other types of leukemia, …
Jacob’s Story – Becoming a Hero
On an otherwise unremarkable day in June 2015, Nicole noticed something about her son that seemed harmless at first – he was limping. She wasn’t immediately alarmed, but some mother’s instinct told her that this wasn’t normal. She took him to see the doctor, who ordered more tests. After four days of bouncing from urgent care to Jacob’s primary care doctor, and after blood tests …
Choosing Strength
As I reach the end of my battle with leukemia, I look back and see how I have developed over two years of fighting. I have changed in character, attitude and most importantly, my faith. Battling cancer helped me see other peoples’ suffering in a new way because I experienced my own terrible pain. Before my diagnosis I was cheerful but short-tempered. I could get …
Raising Brooklyn
Brooklyn was just 2 years old when she was diagnosed with acute lymphoblastic leukemia. An aggressive treatment protocol meant she had to re-learn to crawl and walk, which robbed her of many moments as a “normal” toddler. Now, after 859 days, 5-year-old Brooklyn is finally finished with treatment. However, she still deals with the side effects of high-dose steroids, which impact her appetite, mood and …