Data’s not the flashiest, but it’s the key to childhood cancer

Troves of data around the globe could get us closer to answering the overarching questions: why do kids get cancer, and how can we treat each child in the best possible way? But finding and putting this data together cohesively poses one of the biggest challenges in childhood cancer research. The barrier is so strong, the United States Congress took note and recently passed legislation …

CCRF announces $10.5 million in new grants

Children’s Cancer Research Fund (CCRF) is proud to award $10.5 million in its latest round of funding. The new grants support 12 research organizations that are working to improve treatment and outcomes for children and adolescents with cancer.

Our top 5 childhood cancer research wins of 2020

Following the outbreak of COVID-19, Beau Webber, PhD, an expert in genetic engineering and stem cell research, had to essentially shut down his lab for two months.

2020 was a tumultuous year for many childhood cancer researchers, whose work most often takes place in labs that require hands-on, in-person work.

“The lab is where everything important happens,” said Beau Webber, PhD, an expert in genetic engineering and stem cell research at the University of Minnesota. His lab had to essentially shut down for two months following the outbreak of COVID-19.

However, many researchers were able to continue pursuing big ideas this year, despite the extra challenges. Research into new and innovative ways of fighting childhood cancers, including leukemia, osteosarcoma, neuroblastoma and brain tumors moved forward.

Here are our top 5 childhood cancer research wins of 2020.

Great Cycle Challenge Rider Michael Harris – Why He Rides

Michael Harris understands better than most the fear that comes with a cancer diagnosis. He was on the way out of his annual wellness exam when he mentioned to his doctor that he thought now that he was 50, he thought he’d better schedule a colonoscopy. She told him that for African American men, she recommends starting as early as 40, so he scheduled an …

Testimonials

A lasting impact – Sue Hodder Sue Hodder threw the best 4th of July parties, cared deeply about her community and supported childhood cancer research throughout her life. After she was diagnosed with cancer, she named Children’s Cancer Research Fund as the beneficiary of her memorial fund. When Sue passed away in 2012, her family went on to create the Children’s Cancer Research Fund/Suzanne Holmes …

Research Grant Programs

Research Grant Programs Children’s Cancer Research Fund (CCRF) is a national nonprofit committed to finding safer, more effective therapies for kids battling cancer. Thanks to donors and partners around the country, we have contributed over $235 million to research, education and awareness, and quality-of-life programs for childhood cancer families. We believe kids deserve safer, less toxic treatments, and we’re committed to funding groundbreaking research and …

Harper’s Story – Little Teacher

These were the heart-wrenching words Sarah and Kyle heard from their 6-year-old daughter Harper in the midst of her treatment for leukemia.

Gabe’s Story – Fighting Through Relapse

When Gabe beat acute lymphoblastic leukemia at age 4, his parents, Nicole and Michael, thought they were putting cancer behind them. He’d been diagnosed right after his first birthday and struggled through three years of chemotherapy before finally being declared cancer free. The further away that day got, the less they thought about it. “You don’t really worry after five years,” Nicole said. When a …

“Spicy One” – Harriet’s Story

[Photo courtesy of Keighla’s Fresh Face Photography] Four-year-old Harriet and her sister, Ada, 6, went downstairs into their play room after getting dressed for the day. Harriet was missing her hair, which had fallen out for the second time due to her chemotherapy. She knew she was headed into clinic that day and wanting to “look beautiful.” She found a braid from an Elsa “Frozen” …

Annual Report

Annual Report January 1, 2021 – December 31, 2021 In 2021, you helped us turn “can’t” into “can.” The progress we’ve made together in the world of childhood cancer wasn’t built on “can’t” – it was built on “can”. Because of your support, Myla can finally dance again, after months of difficult treatment for leukemia limited her mobility. Thank you for showing childhood cancer survivors …

Cancer Survivorship Research

Childhood Cancer Survivors The cancer experience doesn’t end with the last chemotherapy treatment.Above: The long term side effects after treatmentWhat do childhood cancer survivors face after cancer? More than 95% of survivors will have a significant health issue related to their cancer or treatment by the time they are 45 years old. Only one in five survivors of childhood cancer receive the customized care and …

Losing Friends During Cancer Treatment

I didn’t really know what a friend was until my son, Liam, was diagnosed with leukemia in May of 2018. When we first got the devastating news, I wondered why people weren’t coming to see us. In a moment of absolute upheaval, we desperately needed something (or someone) familiar to pull us back to earth. We had just moved to a new city and I …

A Survivor’s Note: Geoff

Although it was 17 years ago, cancer survivor Geoff still remembers what it was like to be diagnosed with Burkett lymphoma presenting as leukemia at only 8 years old. When he was diagnosed, doctors told him that 98% of the cells in his bone marrow were cancerous.  Today, Geoff, who just turned 25, is a cancer survivor and software developer who loves music and travel. …

Between Hope and Grief – Lily’s Story

Three-year-old Lily, talkative and full of energy, runs around her living room pointing out her many toys and stuffed animals in her warm home on a chilly evening in November. “Daddy, I found Doctor Jessie’s hat!” she shouts, while holding up her Jessie doll from Toy Story. “She has her dad wrapped around her finger,” says Donna, Lily’s mom, with a smile. Between each toy, …

5,000 Miles in 5 Years – Arden’s Story

When Minnesota physician Arden Virnig hopped on his bike nearly every day in the summer of 2015, his thoughts went to the empty saddle behind him. That June, he rode hundreds of miles on a tandem bike with one empty saddle, a symbol of his daughter, Mary Catherine. The rhythm of his pedaling reminds him of how Mary Catherine’s braid would whip back and forth …

2019 Butterfly Award Winners

Each year, Children’s Cancer Research Fund presents Butterfly Awards to individuals, organizations and teams that have contributed significant time and resources to ending childhood cancer. These are the people that make the pursuit of our mission possible. We are grateful for the time, talent and passion and shared by this year’s award recipients. Vaith Family Ambassador We first met the Vaith family after their daughter, …

Dream Fund Supports 7 New Research Projects

This past April, a group of incredibly generous supporters gathered at the Armory in downtown Minneapolis to celebrate progress and invest in the future of childhood cancer research. That night, these supporters raised nearly $1.3 million. Four months later, that support has funded seven new research projects at the University of Minnesota. Each of these projects were chosen by a group of peer-reviewers at the …