Until now parents and children with rare diseases had little hope for a cure.

Now there is a place we can all organize, have our voices heard and get better results for our children.

PUCK was established to give hope where there wasn't any before. We recognize rare diseases and aim to cross each one off the incurable list, one at a time.

We recognize we cannot cure all diseases at once. PUCK will focus its attention and resources on three diseases at a time. As one gets crossed off the incurable list we will add another. Currently we are focusing on Epidermolysis Bullosa (EB), Fanconi Anemia (FA) and Adrenoleukodystrophy (ALD).

Mission of PUCK:

1. To build awareness for rare diseases
2. To create a place of support for rare diseases
3. To raise money for research on rare diseases

Why PUCK?

We recognize that because of the rarity of many diseases, the opportunity to garner attention in the community and/or raise sufficient funds needed for research is limited. However, just because the disease is rare does not mean it is not important nor devastating.

All funds raised by PUCK will go for cutting-edge research in the battle to find cures for rare childhood diseases. The more funds PUCK raises, the more grants we can fund. The greater number of doctors researching these diseases, the quicker we find cures and move onto the next disease.

The goals are lofty, some may say it is impossible. Perhaps, but we will do it anyway.

Breaking News!

In a paper in the New England Journal of Medicine, our researchers at the University of Minnesota present promising results that give hope to children with the life-threatening, pre-cancerous skin disease recessive dystrophic epidermolysis bullosa.

Our researchers are the first to push adult stem cell therapies beyond treatment of blood and marrow disorders.

This breakthrough would not have been possible without your support.

Click here to learn more about this innovative research.

Children's Cancer Research Fund

For nearly 30 years, Children’s Cancer Research Fund has supported the work at the University of Minnesota in treating children with cancer and has helped build the U of M’s stem cell transplantation program, a common therapy in treating childhood cancer. This therapy has proven effective in treating genetic diseases, many of which, if left untreated, lead to cancer.